Neuropathy

hey fam. I got some difficult news this week😞. Turns out I have EDS, Mast Cell Activation Syndrome, Fibromyalgia and now I am seeing another Dr about possibly POTS and Small Fiber Neuropathy. I already knew about the fibro and painful joints but these new diagnostic realities have me a bit shaken. I could really use some love and assurance from you guys! Tips and treatment suggestions welcomed 🥰

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Anyone have burning feet? It started for me after I contracted Bartonella a few years ago and it gets a little better every year, but it’s still bad. An EMG showed I technically don’t have neuropathy, but no dr can figure out what’s causing the burning. It’s mostly when I have shoes on and especially when I’m walking or exercising

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Hey, I’m new! Have any of you heard of the new transdermal CBD patch that’s been approved for use with fibromyalgia patients? I’ve heard it’s a game changer when it comes to body pain and specifically peripheral neuropathy!

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Just started Cymbalta for depression, neuropathy, & chronic pain management. Does anyone have experiences with this medication? I’ve been on Zoloft for 6 years and weened off of it for the purpose of trying something new.

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anyone w Lyme dealt with persistent neuropathy and if so any treatments that worked ? thanks

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I’ve been diagnosed with Idiopathic Small Fiber Neuropathy (SFN) with a side of POTS and possible other heart related issues. I’ve been learning to live with pain and pins/needles tingling daily. Even with the meds I’m still a mess and having trouble accepting that this is my new reality....and being okay with that. Just need some friends...

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