Interstitial cystitis

hey everybody out there, I’m new. I was thrilled that there’s a nonbinary gender option, and that diagnoses like interstitial cystitis and the MTHFR mutation are here. I’ve been struggling with a variety of mental and physical health challenges over the past 5 years in particular. I started off 2020 feeling the best I can remember feeling... now I’m at a low, low point. Not only have I experienced flare ups of my IC, abdominal discomfort, and musculoskeletal pain... I’ve also been very sick with what might be COVID-19... perhaps it’s chronic sinusitis or something else, but it’s been very strange. And my depression and anxiety have been difficult to manage. I’m worried that I’ll have yet another chronic health issue to grapple with for years to come, and I’m angry that I was doing so well only to have the rug pulled out from under me. Anyone else experiencing this type of health-related grief?

21

15

Anyone here familiar with interstitial cystitis?

19

6

hello all. I’m new to this app and have really been struggling. I have asthma, allergies, eczema, IBS, interstitial cystitis, and endometriosis. my current symptoms are completely affecting my quality of life and I have bouts of depression because I feel so terrible all the time. I feel like I’m a total mess. I feel like my personality is changing from a bubbly, happy, outgoing person to a fatigued, emotional, withdrawn person. I just want to be happy again.

13

9

Hi, everyone. I was wondering if anyone on here has Interstitial Cystitis or IBS. Those weren’t listed as diagnoses.

11

8

Does anyone have interstitial cystitis? It wasn’t an option in the diagnosis list, but I’d love to connect with anyone who also has this disease.

16

15

Anyone have any tips for Interstitial Cystitis? Symptom onset is recent and I am struggling with pain.

7

14